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Ehlers Danlos Syndrome Clinic

Program Description

The goal of the GoodHope Ehlers-Danlos Syndrome (EDS) Clinic is to improve the clinical care options for patients and advance the knowledge of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder (HSD). Very little is known about the relationship between exercise, diet and nutrition, and best practices of pain management in EDS. At present, there is no cure for this disease. Patient-led self-management is currently the best approach for the long-term treatment of both EDS and HSD (along with multidisciplinary specialist referral where required). In our clinical research program, we are investigating the effect of multidisciplinary pain management approaches for joint pain and headaches, aerobic and resistance training for Postural Orthostatic Tachycardia Syndrome (POTS), and diet and nutrition for functional gastrointestinal (GI) disorders. We are also doing basic science research to advance a cure for EDS.

Lead Physician(s)


Dr. Hance Clarke                                             

Dr. Nimish Mittal

Physician Team

Dr. Tania Di Renna

Dr. Maxim Rachinsky 

Dr. Praveen Ganty

Dr. Sonali Hastir

Dr. Louis Liu

Dr. Colleen Parker

Dr. Yvonne Tse

Dr. Dmitry Rozenberg

Dr. Abeer Alomari 

Clinical Care Team

Alexander Belluzzo (Registered Kinesiologist), Zoey Freedman, MSc, CGC (Genetic Counsellor), Molly McCarthy, PhD, CPsych (Clinical Psychologist), Laura McGillis, MN, RN(EC) (Nurse Practitioner), Lisa Palmer, MSW, RSW (Social Worker), Daniel Santa Mina, PhD (Exercise Physiologist), Darsh Sheth, CCPA (Physician Assistant), Rachel Siegal, PhD, CPsych (Clinical Psychologist), Max Slepian, PhD, CPsych (Clinical Psychologist), Wing Ting Truong, MScPT, MHM (Physiotherapist)

Administrative & Research Staff

May Al-Hajjaj, Stephanie Buryk, Beth Curiale, Andrea Sabo, Isabelita Salazar, Jennifer Souza

Referral Information

Associated Websites